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England

The Humanion Coverage: The General Election 2019 Whenever It Is: December 12

The Political Philosophy, That Says That the Most Vital Part of the Public Affairs Management System, the System of Economics, That Shapes the Market and Directs the Course of Existence of the Entire Range of Business, Trade, Commerce and Financial Endeavours of a Nation and Ultimately Shapes the Human Condition of a Nation Should Not Be in the Ownership of the Entire Nation and Its People as Their State and Government Belong to Them and the Political Economics, That Says That the Survival of the Fittest or Richest Is the Ultimate Aim of Society, in Which the Vast Majority of the Population Must Exist and Perish Away in Serving a Live-in-Life Sentence of Suffering, Agony and Hardship and Must Accept All the High-Cruelties, High-Barbarities and High-Tortures, That Capitalism Creates, Distributes and Enforces are Nothing But a Brutal, Cruel, Ruthless and Inhuman Dictate of a Monstrous Social Jingoistic Jungle, Where Neither Civic Nor Community Can Exist Nor Can There Humanity Exist as Humanity Naturale as Individuals, as Families, as Communities, as Agencies and Organisations and as a Civic Society: And When Such a Monstrous Social Jingoistic Jungle is Established in a Country It Becomes Worse Than a Jungle and It Becomes Every Citizen's Civic and Moral Duty and an Existential Necessity of Humanity to Do All in Their Democratic Power to Eliminate Such Jingoistic Jungle and Replace It with a Civic Society Where Community, People, Families, Individuals and All Humanity are as Real, as Connected and as Active, as Engaged and as Creative as the Human Physiology Is in All Humans of a Given Society: Sunday: July 28: 2019

United Kingdom
England Northern Ireland Scotland Wales
VII London Poetry Festival 2019: October 14-15
 

 

 

 

 

 

 

 

 

 

 

England Arkive The General Election 2017 June Eight
 

Disabled Elderly and Ill Gypsies and Travellers Are Forgotten in Site Provision: The Equality and Human Rights Commission Report

 

 

|| Thursday: October 03: 2019 || ά. Gypsies and Travellers, who have stopped travelling due to old age, ill-health, educational needs or being disabled are being forgotten in planning authorities’ site allocation processes following changes to policy definitions.

The latest Report of the Equality and Human Rights Commission UK has assessed the impact of the revised definition of ‘Gypsies’ and 'Travellers’ in the Planning Policy for Traveller Sites 2015. The definition is used by Local Planning Authorities:LPAs in England to assess the need for Traveller sites but, no longer includes those, who have stopped travelling permanently.

The Report found that when LPAs assessed how many pitches they would need to meet the needs of Gypsies and Travellers, following the change in definition, the requirement fell by almost 75%, from 1,299 to 345. This suggests that the needs of a significant number of people in the Gypsy and Traveller community, who still require culturally appropriate accommodation but no longer follow a nomadic lifestyle, are not being considered.

The Report, ‘Is Britain Fairer? 2018’ identified a number of troubling trends affecting Gypsy and Traveller communities, including, a significant increase in the number of unauthorised encampments in England. The new research, which highlights a lack of site provision, reinforces the Commission’s concerns that the revised definition is contributing to this increase.

To address this, the Commission has written to the Ministry of Housing, Communities and Local Government and set out a number of recommendations, including, for it to publish guidance for local authorities on how to consider the needs of Gypsies and Travellers, who do not fall within the definition, through general housing policies.

Mr David Isaac, the Chair of the Equality and Human Rights Commission, said, ‘’It is clear that a lack of adequate site provision is impacting Gypsies and Travellers’ rights to live in culturally appropriate accommodation and, may be, contributing to the rise in unauthorised encampments. Not having suitable housing exacerbates the inequalities that Gypsy and Traveller communities face. To be entirely forgotten in local authority assessments is unacceptable. 

The upcoming UN review on racial inequality will place a spotlight on the government’s progress in this area so now is the right time to ensure improvements are made to address these concerns. We have called on the government to use its forthcoming new strategy to improve outcomes for Gypsy, Roma and Traveller groups by introducing a statutory duty to provide safe and appropriate sites for all Gypsies and Travellers. This would go a long way to ensure they can realise their right to an adequate standard of living.’’

The research, also, found that the approach to planning policies was inconsistent across LPAs. At the time the research was carried out, only, eight out of the 20 assessed had plans that aimed to accommodate the needs of those, who did not meet the definition.

The lack of sufficient and appropriate sites for Gypsy and Traveller communities has been repeatedly criticised by international human rights bodies. With the UN examination of the UK’s record on combating racial inequality approaching, the Commission has reiterated its call for the government to introduce a statutory duty on local authorities in England to provide sufficient, safe and culturally appropriate sites for Gypsies and Travellers.

Readmore.:::ω.

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The National Institute for Health and Care Excellence Recommends Gene Therapy Treatment for Rare Inherited Retinal Dystrophy Eye Disorder

 

 

 

 

 

 

 

 

 

 

 

 

 

|| Monday: September 09: 2019 || ά. The National Institute for Health And Care Excellence:NICE is recommending a new gene therapy treatment for rare inherited eye disorder for use on the NHS. The draft, highly specialised technologies guidance, recommends Voretigene Neparvovec, also, called, Luxturna and made by Novartis Pharmaceuticals UK for people with vision loss, caused by Inherited Retinal Dystrophy from confirmed RPE65 gene mutations and who have enough viable retinal cells.

Voretigene Neparvovec is the first licensed gene therapy for vision loss caused by RPE65-meidated Inherited Retinal Dystrophy, which, are a group of eye diseases, caused by gene mutations. The gene therapy is injected by a surgeon into the retina, at the back of the eye. This results in the gradual degeneration of the light sensitive cells, photo-receptor cells, which are there.

It works by introducing a healthy copy of the defective RPE65 gene into the retinal cells, enabling people with the condition to produce functional RPE65 protein.

Mr Meindert Boysen, the Director of the Centre for Health Technology Evaluation at NICE, said, "This is a highly innovative treatment for a very distressing, inherited condition so we are pleased the company has worked with us and NHS England and Improvement to allow us to offer these families hope for the future.

The company's willingness to work with us early and constructively has allowed us to publish this guidance on a much faster timeline than normal which is good news for patients."

NICE evaluated Voretigene Neparvovec treatment took 20 weeks, instead of the averaging 38 weeks, within the Highly Specialised Technologies Programme

It is estimated that there are 86 patients eligible for Voretigene Neparvovec in England. The list price of the medicine is £613,410 per patient. This technology breached the Budget Impact Test, meaning that it would have cost the NHS more than £20 million in one of the first three years after being introduced.

However, the Company has a commercial arrangement with NHS England, making the treatment available to the NHS at a discount, the size, of which, is commercial in confidence. NICE expects to publish its final guidance next month, if, there are no appeals received from consultees, including, the company, healthcare professionals and patient:carer organisations of the draft recommendations.

The clinical trials show that, in short term, there is a prevention in deterioration of the disorder. However, there is currently no study for the long term but, the Committee is confident with the possibility of the outcome.

About the National Institute for Health and Care Excellence:NICE: NICE is the independent body, responsible for driving improvement in the health and social care system by allowing their products and resources to be available to these sectors, at a value for money to reduce inequalities and variation.

Readmore at nice.org.uk:::ω.

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The NHS England Calls for Applications From Female Healthcare Scientists to Apply for Its Leadership Development Scheme: Deadline May 10

 

 

 

|| March 13: 2019 || ά. Female healthcare scientists are invited to apply for the NHS England’s Leadership Development Scheme, aimed at mid-career healthcare scientists to develop leaders and increase their impact within their Trusts and beyond.

Led by the NHS England’s Chief Scientific Officer, the CSOWISE Healthcare Science Leadership Development Programme for the NHS England Scheme provides support for 32 healthcare scientists over 12 months through a leadership development programme, that includes mentoring, alongside, communication and leadership skills training.

In addition, successful applicants will have the opportunity to attend the Chief Scientific Officer conference and become WISE role models, helping to inspire the next generation to follow in their footsteps. The initiative was launched in partnership with WISE, the campaign for gender balance in science, technology and engineering, on International Women’s Day at the NHS England Chief Scientific Officer’s Annual Conference.

The 2019 scheme was formally announced by Professor Dame Sue Hill DBE, the Chief Scientific Officer for England, who, in support of the WISE campaign, has taken on the role of WISE Lead Ambassador, working in collaboration with a team of female leaders to encourage women and girls to value and pursue science, technology, engineering and maths.

Professor Dame Sue Hill DBE, the Chief Scientific Officer for England, said, “The initiative was a unique opportunity to inspire the next generation of female healthcare scientists to gain leadership, knowledge and experience. We are delighted to partner with WISE and launch this prestigious opportunity on International Woman’s Day for a fourth year.

Science and innovation play a crucial role in patient-centred service transformation and are vital to delivering new frontiers in areas, such as, Genomic Medicine and tackling anti-microbial resistance. Ensuring our healthcare system operates at the limits of science, this Programme recognises the significant contribution women make to technology and engineering, providing a global contribution to science in health and inspiring the next generation of scientists.”

Ms Helen Wollaston, the Chief Executive, WISE, highlighted the impressive impact from the previous fellowships and said, “The ripple effect of the WISE Fellowship has surpassed all expectations. We are delighted to be expanding the number of women involved in the programme. We look forward to using their stories to inspire more girls to see how choosing scientific subjects at school can lead to a career where they will make a real difference to people’s lives.”

Applications are open now. The deadline for applications is  May 10: noon. To find out more or apply visit the WISE website:::ω.

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